Lipedema Foundation

Lipedema Foundation

Research

Greenwich, Connecticut 2,437 followers

Defining the Lipedema Research Space -- Finding a Diagnostic Test to enable rigorous research and helpful treatment

About us

The Foundation's Mission is to Define, Diagnose and Develop Treatments for Lipedema. The Foundation aims to accomplish this by supporting collaborative research that addresses the basic biology, genetics, and epidemiology of the disease. The Foundation's Values include: Transparency – the Foundation strives for an open and active discussion with and amongst grantees Collaboration – the Foundation stresses the importance of collaborative research Community – the Foundation favors efforts that will build and leverage a patient-researcher community The Lipedema Foundation is not a medical provider and shares content for informational purposes only. Consult a healthcare professional about medical advice.

Website
https://www.lipedema.org
Industry
Research
Company size
2-10 employees
Headquarters
Greenwich, Connecticut
Type
Nonprofit
Founded
2015
Specialties
Scientific Research, Medical Research, Lymphatics Research, Microvascular Research, Adipose Research, and Grantmaking

Locations

Employees at Lipedema Foundation

Updates

  • View organization page for Lipedema Foundation, graphic

    2,437 followers

    Finding the right therapist can make a significant difference in managing Lipedema. Our LF Provider Directory is here to help patients, caregivers, and healthcare providers locate rehabilitative therapy professionals who specialize in treating Lipedema. 🔹 Steps to Use the Directory Effectively: 1. Access the Directory: Best viewed on a desktop or laptop. 2. Combine Resources: Use it alongside our Patient Self-Advocacy Guide for evaluating and preparing for appointments. 3. Search by Area: Locate therapists near you who have the necessary training and experience. 4. Stay Updated: Encourage providers to sign up for the LF Newsletter for future expansions. Help us reach our goal of getting at least 300 providers added to the directory this year by sharing this resource with others. As our Provider Directory grows, so does the support for our community! bit.ly/49Oa9GS

  • View organization page for Lipedema Foundation, graphic

    2,437 followers

    Navigating Lipedema treatment options is crucial for healthcare professionals. Differentiating between conservative and invasive methods can guide effective patient care. Conservative treatments: These non-invasive methods include lifestyle changes and working with rehabilitative therapy professionals. Invasive treatments: Surgical options, such as liposuction, may be right for some patients, but carry higher risks. Both approaches aim to alleviate symptoms and enhance quality of life and are often used simultaneously. Ensure your patients are well-informed and consult with specialists to determine the best treatment plans. 🔗 For more detailed information, visit: bit.ly/3VL7j0o

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  • View organization page for Lipedema Foundation, graphic

    2,437 followers

    We extend our heartfelt thanks to everyone who supported us during Lipedema Awareness Month. Your engagement and contributions are vital to our mission. Although the official awareness month has ended, our efforts to spread awareness and make an impact continue. In case you missed it, explore our patient stories and more information on our Lipedema Awareness Month landing page. Together, we can continue to advance the understanding and recognition of Lipedema. bit.ly/3V1nciR

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  • View organization page for Lipedema Foundation, graphic

    2,437 followers

    🔬 The Lipedema Foundation is pleased to announce the findings of a new study by Lundanes et al. that investigates the impact of a low-carbohydrate ketogenic diet on women with Lipedema. This randomized control trial, involving 35 participants in each group, highlights several potential benefits, including reduced pain intensity, improved quality of life, and weight loss. These results are promising and suggest that a ketogenic diet might be beneficial for managing Lipedema symptoms. However, further research is necessary to validate these findings and explore the underlying mechanisms. For more detailed insights, you can access the full study here: bit.ly/4bwTsk1

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  • View organization page for Lipedema Foundation, graphic

    2,437 followers

    In honor of Lipedema Awareness Month, we extend our gratitude to the amazing rehabilitative therapy professionals who understand Lipedema and have supported so many patients #LivingFullywithLipedema. 🌟 Our Provider Directory is a vital resource for patients, caregivers, and healthcare providers to locate therapists experienced in treating Lipedema. It's not too late for rehabilitative therapy professionals to sign up and be part of the directory! Explore the Provider Directory today to connect with experienced rehabilitative therapy professionals or consider signing up: https://bit.ly/49Oa9GS

  • View organization page for Lipedema Foundation, graphic

    2,437 followers

    This is your last chance to take advantage of a historical opportunity to make sure Lipedema is prominently on the NIH��s radar! The deadline is 11:59:59 pm (ET) on Friday, June 28, 2024. Submit your response to the National Commission of Lymphatic Diseases’s Request for Information. You do not have to complete every prompt on the RFI to submit your response - say as much or as little as you would like in each section. Every response matters, so please consider submitting your thoughts to the RFI! bit.ly/4b7D49t

    RFI

    rfi.grants.nih.gov

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